| Cancer
Information & Links
Learning to become “Patient Active”
The Cancer Support Community has educational resources available
online at:
http://www.cancersupportcommunity.org/mm/Learn-About.aspx
or by calling 1-888-793-WELL.
Click here for information on national cancer financial assistance programs including co-pay and prescription assistance.
Current educational series
available are:
Advanced Breast Cancer
Clinical Trials
Colorectal Cancer
Lung Cancer
Small Cell Lung Cancer
Lymphoma
New Discoveries
Ovarian Cancer
Side Effects Management
Cancer Vaccines |
|
TWCP Barn Mural |
Cancer Resources on the Internet
NOTE: Every effort has been made to provide up-to-date information;
however, the Internet is frequently updated and URLs may have changed
since completion of this listing. The Wellness Community of Philadelphia
has not investigated nor has any information as to the quality and/or
reliability of any organization, resource, or online information
listed below. The inclusion of any resource is not an endorsement
or recommendation of any kind.
General Cancer Resources
on the Internet
American Association of Cancer Research (AACR)
http://www.aacr.org/default.aspx
AACR is the oldest and largest scientific organization in the world
focused on every aspect of high-quality, innovative cancer research.
The American Cancer Society (ACS)
http://www.cancer.org/docroot/home/index.asp
The American Cancer Society is a nationwide community-based voluntary
health organization dedicated to eliminating cancer as a major health
problem by preventing cancer, saving lives, and diminishing suffering
from cancer, through research, education, advocacy, and service.
Association of Cancer OnLine Resources (ACOR)
http://www.acor.org/index.html
ACOR offers access to mailing lists that provide support, information,
and community to everyone affected by cancer and related disorders.
Cancer Care, Inc.
http://www.cancercare.org/
Cancer Care is a national nonprofit organization that provides free,
professional support services for anyone affected by cancer.
Cancer Hope Network
http://www.cancerhopenetwork.org
Cancer Hope Network is a not-for-profit organization that provides
free and confidential one-on-one support to cancer patients and
their families by matching cancer patients and/or family members
with trained volunteers who have themselves undergone and recovered
from a similar cancer experience.
CancerSymptoms.org
http://www.cancersymptoms.org/
This website of the Oncology Nursing Society is designed for patients and caregivers to provide information on learning about and managing each of ten cancer treatment-related symptoms that patients undergoing treatment for a cancer diagnosis commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.
Gilda’s Club
http://www.gildasclub.org/
The mission of Gilda's Club is to provide meeting places where men,
women and children living with cancer and their families and friends
join with others to build emotional and social support as a supplement
to medical care.
LiveStrong – Lance Armstrong Foundation
http://www.livestrong.org/site/c.jvKZLbMRIsG/b.594849/k.CC7C/Home.htm
The Lance Armstrong Foundation is a registered 501(c)(3) nonprofit
organization located in Austin, Texas. Founded in 1997 by cancer
survivor and champion cyclist, Lance Armstrong, the LAF inspires
and empowers people with cancer.
National Cancer Institute (NCI)
http://www.cancer.gov/
The National Cancer Institute coordinates the National Cancer Program,
which conducts and supports research, training, health information
dissemination, and other programs with respect to the cause, diagnosis,
prevention, and treatment of cancer, rehabilitation from cancer,
and the continuing care of cancer patients and the families of cancer
patients
National Coalition for Cancer Survivorship (NCCS)
http://www.canceradvocacy.org
The National Coalition for Cancer Survivorship is the oldest survivor-led
cancer advocacy organization in the country and a highly respected
authentic voice at the federal level, advocating for quality cancer
care for all Americans and empowering cancer survivors.
OncoLink
http://www.oncolink.com/index.cfm
OncoLink was founded in 1994 by Penn cancer specialists with a mission
to help cancer patients, families, health care professionals, and
the general public get accurate cancer-related information at no
charge.
People Living with Cancer
www.peoplelivingwithcancer.org
Oncologist approved information from the American Society of Clinical
Oncology. This is a very comprehensive site and easy to navigate.
Vital Options® International TeleSupport® Cancer Network
http://www.vitaloptions.org/
Vital Options® International TeleSupport® Cancer Network
is a not-for-profit cancer communications, support and advocacy
organization whose mission is to facilitate a global cancer dialogue
by using communications technology to reach every person touched
by cancer.
Diagnosis Specific Links
Advanced Breast Cancer Community
http://advancedbreastcancercommunity.org
The Advanced Breast Cancer Community is a comprehensive information source and online community solely dedicated to the needs of advanced/metastatic breast cancer patients, caregivers, family and friends, and healthcare providers.
The American Brain Tumor Association
http://www.abta.org
The American Brain Tumor Association (ABTA) is a not-for-profit, independent organization. Not affiliated with any one institution, we serve individuals globally and award funds to researchers throughout the United States and Canada.
Bladder Cancer WebCafé
http://blcwebcafe.org/default.asp
The goal of WebCafé is to present information on current treatment options for bladder cancer in an unbiased way and to help direct users to further information via the Web on the subjects that concern them. We are not affiliated with any organization, and all external links given throughout the site are for reference purposes only by WebCafé or by any of the authors of documents on this web site.
Breast Cancer.org
http://www.breastcancer.org/
Breastcancer.org is a nonprofit organization dedicated to providing
the most reliable, complete, and up-to-date information about breast
cancer.
The Colon Cancer Alliance
http://www.ccalliance.org/
The Colon Cancer Alliance (CCA) is a national patient advocacy organization
dedicated to ending the suffering caused by colorectal cancer. CCA
is the official patient support partner of Katie Couric's National
Colorectal Cancer Research Alliance (NCCRA).
Inflammatory Breast Cancer Research Foundation
http://www.ibcresearch.org/
Provides information about inflammatory breast cancer and support
options
Kidney Cancer Association
http://www.kidneycancer.org/
The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. We fund, promote, and collaborate with the National Cancer Institute (NCI), American Society for Clinical Oncology (ASCO), American Urological Association (AUA), and other institutions on research projects. We educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels.
The Leukemia & Lymphoma Society
http://leukemia-lymphoma.org/hm_lls
The Leukemia & Lymphoma Society is the world's largest voluntary
health organization dedicated to funding blood cancer research,
education, and patient services. The Society's mission: Cure leukemia,
lymphoma, Hodgkin's disease and myeloma, and improve the quality
of life of patients and their families.
Linda Creed
http://www.lindacreed.org/index.php
The mission of Linda Creed is to fight breast cancer with heart through community-based education and referral, support, advocacy and direct service for those who need us.
Living Beyond Breast Cancer
http://www.lbbc.org/index.asp
A nonprofit organization dedicated to empowering all women affected
by breast cancer to live as long as possible with the best quality
of life.
Lung Cancer Alliance http://www.lungcanceralliance.org/ A national non-profit organization dedicated solely to patient support and advocacy for people living with lung cancer and those at risk for the disease.
The Lung Cancer Online Foundation
http://www.lungcanceronline.org
The mission of The Lung Cancer Online Foundation (LCOF) is to improve
the quality of care and quality of life for people with lung cancer
by funding lung cancer research and providing information to patients
and families via Lungcanceronline.org.
The Melanoma Patients' Information Page
http://www.mpip.org/
This is a noncommercial site founded to provide support and information to melanoma patients and those who care for them.
Men Against Breast Cancer
http://menagainstbreastcancer.org/
The organization was founded to provide men who support women with
breast cancer with information, advice, and support.
The National Brain Tumor Foundation
http://braintumor.org/faboutus/
The National Brain Tumor Foundation (NBTF) is a nationwide non-profit organization serving people whose lives are affected by brain tumors. The organization funds research and provides information and resources.
National Breast Cancer Coalition
http://www.stopbreastcancer.org/nbccf/index.html
On-line guide to quality Breast Cancer care
National Ovarian Cancer Coalition (NOCC)
http://www.ovarian.org/
The mission of NOCC is to raise awareness and promote education
about ovarian cancer. The Coalition is committed to improving the
survival rate and quality of life for women with ovarian cancer.
The Ovarian Cancer National Alliance
http://www.ovariancancer.org
The Ovarian Cancer National Alliance is a patient-led, umbrella
organization uniting ovarian cancer activists, women's health advocates,
and health care professionals in the effort to increase public and
professional understanding of ovarian cancer and to advocate for
more effective diagnostics, treatments, and a cure.
The PA Breast Cancer Coalition
http://www.pabreastcancer.org/
The PA Breast Cancer Coalition (PBCC) represents, supports, and serves breast cancer survivors and their families in Pennsylvania through educational programming, legislative advocacy, and unique outreach initiatives. The PBCC is a statewide non-profit organization that creates the hope of a brighter tomorrow by providing action and information to women with breast cancer today.
Pancreatic Cancer Network
http://www.pancan.org/
PanCAN’s Patient and Liaison Services (PALS) is a comprehensive, free call-in information program for pancreatic cancer patients, their families, and health professionals. All services and educational materials are provided at no charge.
Philadelphia Multiple Myeloma Networking Group
http://www.philadelphia.myeloma.org/index.html
This group sponsored by the International Myeloma Foundation seeks to be an ongoing resource for information, support, shared experiences and hope for persons with multiple myeloma, their family and friends.
Susan G. Komen for the Cure
http://ww5.komen.org
Susan G. Komen for the Cure strives to eradicate breast cancer through
its
support of research and community-based outreach programs.
The Thyroid Cancer Survivors Association
http://thyca.org/
This site maintains current information about thyroid cancer and
support services available to people at any stage of testing, treatment,
or lifelong monitoring for thyroid cancer, as well as their caregivers.
Us TOO International (Prostate Cancer)
http://www.ustoo.com/
Us TOO is a not-for-profit charitable organization dedicated to
communicating timely and reliable information enabling informed
choices regarding detection and treatment of prostate cancer. Ultimately,
Us TOO strives to enhance the quality of life for all those affected
by prostate cancer.
Women’s Cancer Network
http://www.wcn.org/
Provides information and links to all gynecologic cancers and all
cancers that affect women
The Young Survival Coalition
http://www.youngsurvival.org/young-women-and-bc/resources/
The Young Survival Coalition (YSC) is the premier international, nonprofit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. This is the link to a very good resource guide.
Complementary Medicine
MD Anderson Cancer Center
http://www.mdanderson.org/departments/cimer/
MD Anderson Cancer Center’s Complementary/Integrative Medicine Education Resources (CIMER) Web site is offered to help patients and physicians decide how best to integrate such therapies into their care.
Memorial Sloan-Kettering Cancer Center: About Herbs, Botanicals, and other products
http://www.mskcc.org/mskcc/html/11570.cfm
This information resource, presented by the MSKCC Integrative Medicine Service, provides evidence-based information about herbs, botanicals, supplements, and more. The listing allows you to search for a particular item, view its possible uses, side effects, indications and contra-indications, as well as research articles.
Clinical Trials
The Coalition of Cancer Cooperative Groups
http://www.cancertrialshelp.org/
The Coalition of Cancer Cooperative Groups is a non-profit organization whose mission is to improve the quality of life and survival of cancer patients by increasing participation in cancer clinical trials.
National Institute of Cancer http://www.cancer.gov/clinicaltrials/search
Search for clinical trials available throughout the country and learn about participation in a clinical trial.
Hospitals
Fox Chase Cancer Center
http://www.fccc.edu
Fox Chase Cancer Center was founded in 1904 in Philadelphia, PA as the nation's first cancer hospital. In 1974, Fox Chase became one of the first institutions designated as a National Cancer Institute Comprehensive Cancer Center. Fox Chase conducts basic, clinical, population and translational research; programs of prevention, detection and treatment of cancer; and community outreach.
_________________________________________________________________________________________
Additional Links
Cancer Survivors Unite
http://www.cancersurvivorsunite.org
This is a local non-profit organization started by a young cancer survivor. The mission is to provide supportive programs and informational resources to young adults, between 18 and 40 years old, affected by a cancer diagnosis.
Health Finder
http://www.healthfinder.gov/
Health Finder is an award-winning Federal web site for consumers, developed by the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, Health Finder has been recognized as a key resource for finding the best government and non-profit health and human services information on the Internet. Health Finder links to carefully selected information and web sites from over 1,500 health-related organizations.
Heath Insurance Info
http://www.healthinsuranceinfo.net
Non-profit website that provides consumer guides to insurance for each state.
Hosts for Hospitals
http://www.hostsforhospitals.org
Hosts for Hospitals provides free lodging and support at volunteer-host homes as a caring response to the housing needs of patients and their families who come to the Greater Philadelphia area for specialized medical care.
Kids Konnected
http://www.kidskonnected.org/
Kids Konnected's mission is to provide friendship, understanding, education, and support for the children who have a parent with cancer, or have lost a parent to cancer. When a parent gets cancer, the entire family is affected. Children facing the same fears and similar experiences can be helped by others in a similar situation.
MANNA
http://www.mannapa.org/index.asp
A small professional staff and 1,000 dedicated volunteers bring over 40,000 nutritious, freshly prepared, home-delivered meals each month to individuals and families living with HIV/AIDS, cancer, or other life-threatening illness. MANNA dieticians promote wellness through nutrition education and counseling. Through these services, MANNA provides opportunities for caring people to extend loving support to families, friends, and neighbors in the Delaware Valley.
MedlinePlus
http://medlineplus.gov/
MedlinePlus will direct you to information to help answer health
questions. MedlinePlus brings together authoritative information
from NLM, the National Institutes of Health (NIH), and other government
agencies and health-related organizations
The National Hospice and Palliative Care Organization (NHPCO)
http://www.nhpco.org/templates/1/homepage.cfm
The National Hospice and Palliative Care Organization (NHPCO) is
the largest nonprofit membership organization representing hospice
and palliative care programs and professionals in the United States.
The organization is committed to improving end of life care and
expanding access to hospice care with the goal of profoundly enhancing
quality of life for people dying in America and their loved ones.
The National Family Caregivers Association
http://www.thefamilycaregiver.org
The National Family Caregivers Association (NFCA) supports, empowers,
educates, and speaks up for the more than 50 million Americans who
care for a chronically ill, aged, or disabled loved one. NFCA reaches
across the boundaries of different diagnoses, different relationships,
and different life stages to address the common needs and concerns
of all family caregivers.
The Patient Access Network
https://www.panfoundation.org
The Patient Access Network Foundation is a non-profit organization dedicated to supporting the needs of patients that cannot access the treatments they need due to out-of-pocket health care costs.
The Patient Advocate Foundation
http://www.patientadvocate.org
Patient Advocate Foundation is a national non-profit organization
that seeks to safeguard patients through effective mediation assuring
access to care, maintenance of employment, and preservation of their
financial stability.
The Rosalynn Carter Institute for Caregiving
http://www.rosalynncarter.org/home/ This organization works for advocacy and education. It provides information and resources for caregivers.
Strength for Caring
http://www.strengthforcaring.com/manual/index.html
The Johnson & Johnson Caregiver Initiative is a pioneer in the emerging field of family caregiver support and StrengthForCaring.com (SFC) is the cornerstone of this important program. SFC is a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support.
Please refer to the Cancer Support Community page for additional
web resources.
http://www.cancersupportcommunity.org/hope/library.php
|
