Cancer Information & Links
Learning to become “Patient Active”

The Wellness Community has educational resources available online at:
http://www.thewellnesscommunity.org/education/
or by calling 1-888-793-WELL.

Click here for information on national cancer financial assistance programs including co-pay and prescription assistance.

Current educational series available are: Advanced Breast Cancer Clinical Trials Colorectal Cancer Lung Cancer Small Cell Lung Cancer Lymphoma New Discoveries Ovarian Cancer Side Effects Management Cancer Vaccines

TWCP Barn Mural

NOTE: Every effort has been made to provide up-to-date information; however, the Internet is frequently updated and URLs may have changed since completion of this listing. The Wellness Community of Philadelphia has not investigated nor has any information as to the quality and/or reliability of any organization, resource, or online information listed below. The inclusion of any resource is not an endorsement or recommendation of any kind.

General Cancer Resources on the Internet

American Association of Cancer Research (AACR)
http://www.aacr.org/default.aspx
AACR is the oldest and largest scientific organization in the world focused on every aspect of high-quality, innovative cancer research.

The American Cancer Society (ACS)
http://www.cancer.org/docroot/home/index.asp
The American Cancer Society is a nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

Association of Cancer OnLine Resources (ACOR)
http://www.acor.org/index.html
ACOR offers access to mailing lists that provide support, information, and community to everyone affected by cancer and related disorders.

Cancer Care, Inc.
http://www.cancercare.org/
Cancer Care is a national nonprofit organization that provides free, professional support services for anyone affected by cancer.

Cancer Hope Network
http://www.cancerhopenetwork.org/chn.jsp
Cancer Hope Network is a not-for-profit organization that provides free and confidential one-on-one support to cancer patients and their families by matching cancer patients and/or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience.

CancerSymptoms.org

http://www.cancersymptoms.org/

This website of the Oncology Nursing Society is designed for patients and caregivers to provide information on learning about and managing each of ten cancer treatment-related symptoms that patients undergoing treatment for a cancer diagnosis commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.

Gilda’s Club
http://www.gildasclub.org/
The mission of Gilda's Club is to provide meeting places where men, women and children living with cancer and their families and friends join with others to build emotional and social support as a supplement to medical care.

LiveStrong – Lance Armstrong Foundation
http://www.livestrong.org/site/c.jvKZLbMRIsG/b.594849/k.CC7C/Home.htm
The Lance Armstrong Foundation is a registered 501(c)(3) nonprofit organization located in Austin, Texas. Founded in 1997 by cancer survivor and champion cyclist, Lance Armstrong, the LAF inspires and empowers people with cancer.

National Cancer Institute (NCI)
http://www.cancer.gov/
The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients

National Coalition for Cancer Survivorship (NCCS)
http://www.canceradvocacy.org
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors.

OncoLink
http://www.oncolink.com/index.cfm
OncoLink was founded in 1994 by Penn cancer specialists with a mission to help cancer patients, families, health care professionals, and the general public get accurate cancer-related information at no charge.

People Living with Cancer

www.peoplelivingwithcancer.org

Oncologist approved information from the American Society of Clinical Oncology.  This is a very comprehensive site and easy to navigate.

Vital Options® International TeleSupport® Cancer Network
http://www.vitaloptions.org/
Vital Options® International TeleSupport® Cancer Network is a not-for-profit cancer communications, support and advocacy organization whose mission is to facilitate a global cancer dialogue by using communications technology to reach every person touched by cancer.

Diagnosis Specific Links

The American Brain Tumor Association

http://www.abta.org                                                                                                               

The American Brain Tumor Association (ABTA) is a not-for-profit, independent organization.  Not affiliated with any one institution, we serve individuals globally and award funds to researchers throughout the United States and Canada.

Bladder Cancer WebCafé

http://blcwebcafe.org/default.asp

The goal of WebCafé is to present information on current treatment options for bladder cancer in an unbiased way and to help direct users to further information via the Web on the subjects that concern them.  We are not affiliated with any organization, and all external links given throughout the site are for reference purposes only by WebCafé or by any of the authors of documents on this web site.

Breast Cancer.org
http://www.breastcancer.org/
Breastcancer.org is a nonprofit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer.

The Colon Cancer Alliance
http://www.ccalliance.org/
The Colon Cancer Alliance (CCA) is a national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer. CCA is the official patient support partner of Katie Couric's National Colorectal Cancer Research Alliance (NCCRA).

Inflammatory Breast Cancer Research Foundation
http://www.ibcresearch.org/
Provides information about inflammatory breast cancer and support options

The Leukemia & Lymphoma Society
http://leukemia-lymphoma.org/hm_lls
The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.

Living Beyond Breast Cancer
http://www.lbbc.org/index.asp
A nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life.

Lung Cancer Alliance                                                                                                http://www.lungcanceralliance.org/                                                                                                         A national non-profit organization dedicated solely to patient support and advocacy for people living with lung cancer and those at risk for the disease.

The Lung Cancer Online Foundation
http://www.lungcanceronline.org
The mission of The Lung Cancer Online Foundation (LCOF) is to improve the quality of care and quality of life for people with lung cancer by funding lung cancer research and providing information to patients and families via Lungcanceronline.org.

The Melanoma Patients' Information Page

http://www.mpip.org/

This is a noncommercial site founded to provide support and information to melanoma patients and those who care for them.

Men Against Breast Cancer
http://menagainstbreastcancer.org/
The organization was founded to provide men who support women with breast cancer with information, advice, and support.

The National Brain Tumor Foundation                                                    

http://braintumor.org/faboutus/

National Breast Cancer Coalition
http://www.stopbreastcancer.org/nbccf/index.html
On-line guide to quality Breast Cancer care

National Ovarian Cancer Coalition (NOCC)
http://www.ovarian.org/
The mission of NOCC is to raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer.

The Ovarian Cancer National Alliance
http://www.ovariancancer.org
The Ovarian Cancer National Alliance is a patient-led, umbrella organization uniting ovarian cancer activists, women's health advocates, and health care professionals in the effort to increase public and professional understanding of ovarian cancer and to advocate for more effective diagnostics, treatments, and a cure.

The PA Breast Cancer Coalition

http://www.pabreastcancer.org/

The PA Breast Cancer Coalition (PBCC) represents, supports, and serves breast cancer survivors and their families in Pennsylvania through educational programming, legislative advocacy, and unique outreach initiatives.  The PBCC is a statewide non-profit organization that creates the hope of a brighter tomorrow by providing action and information to women with breast cancer today.

Pancreatic Cancer Network

http://www.pancan.org/

PanCAN’s Patient and Liaison Services (PALS) is a comprehensive, free call-in information program for pancreatic cancer patients, their families, and health professionals.  All services and educational materials are provided at no charge.

Susan G. Komen for the Cure
http://cms.komen.org/komen/index.htm
Susan G. Komen for the Cure strives to eradicate breast cancer through its
support of research and community-based outreach programs.

The Thyroid Cancer Survivors Association
http://thyca.org/
This site maintains current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers.

Us TOO International (Prostate Cancer)
http://www.ustoo.com/
Us TOO is a not-for-profit charitable organization dedicated to communicating timely and reliable information enabling informed choices regarding detection and treatment of prostate cancer. Ultimately, Us TOO strives to enhance the quality of life for all those affected by prostate cancer.

Women’s Cancer Network
http://www.wcn.org/
Provides information and links to all gynecologic cancers and all cancers that affect women

Complementary Medicine

MD Anderson Cancer Center

http://www.mdanderson.org/departments/cimer/

MD Anderson Cancer Center’s Complementary/Integrative Medicine Education Resources (CIMER) Web site is offered to help patients and physicians decide how best to integrate such therapies into their care.

Memorial Sloan-Kettering Cancer Center:  About Herbs, Botanicals, and other products

http://www.mskcc.org/mskcc/html/11570.cfm

This information resource, presented by the MSKCC Integrative Medicine Service, provides evidence-based information about herbs, botanicals, supplements, and more.  The listing allows you to search for a particular item, view its possible uses, side effects, indications and contra-indications, as well as research articles.

Clinical Trials

The Coalition of Cancer Cooperative Groups

http://www.cancertrialshelp.org/

The Coalition of Cancer Cooperative Groups is a non-profit organization whose mission is to improve the quality of life and survival of cancer patients by increasing participation in cancer clinical trials.

National Institute of Cancer                                                      http://www.cancer.gov/clinicaltrials/search                                                                                     

Search for clinical trials available throughout the country and learn about participation in a clinical trial.

Hospitals

Fox Chase Cancer Center

http://www.fccc.edu

Fox Chase Cancer Center was founded in 1904 in Philadelphia, PA as the nation's first cancer hospital. In 1974, Fox Chase became one of the first institutions designated as a National Cancer Institute Comprehensive Cancer Center. Fox Chase conducts basic, clinical, population and translational research; programs of prevention, detection and treatment of cancer; and community outreach.

_________________________________________________________________________________________

Additional Links

Cancer Survivors Unite

http://www.cancersurvivorsunite.org/index.php

This is a local non-profit organization started by a young cancer survivor.  The mission is to provide supportive programs and informational resources to young adults, between 18 and 40 years old, affected by a cancer diagnosis.

Health Finder

http://www.healthfinder.gov/

Hosts for Hospitals

http://www.hostsforhospitals.org

Hosts for Hospitals provides free lodging and support at volunteer-host homes as a caring response to the housing needs of patients and their families who come to the Greater Philadelphia area for specialized medical care.

Kids Konnected

http://www.kidskonnected.org/

Kids Konnected's mission is to provide friendship, understanding, education, and support for the children who have a parent with cancer, or have lost a parent to cancer.  When a parent gets cancer, the entire family is affected.  Children facing the same fears and similar experiences can be helped by others in a similar situation.

MANNA

http://www.mannapa.org/index.asp

A small professional staff and 1,000 dedicated volunteers bring over 40,000 nutritious, freshly prepared, home-delivered meals each month to individuals and families living with HIV/AIDS, cancer, or other life-threatening illness.  MANNA dieticians promote wellness through nutrition education and counseling. Through these services, MANNA provides opportunities for caring people to extend loving support to families, friends, and neighbors in the Delaware Valley.

MedlinePlus
http://medlineplus.gov/
MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations

The National Hospice and Palliative Care Organization (NHPCO)
http://www.nhpco.org/templates/1/homepage.cfm
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

The National Family Caregivers Association
http://www.thefamilycaregiver.org
The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships, and different life stages to address the common needs and concerns of all family caregivers.

The Patient Access Network

https://www.patientaccessnetwork.org/                                                                                           

The Patient Access Network Foundation is a non-profit organization dedicated to supporting the needs of patients that cannot access the treatments they need due to out-of-pocket health care costs.

The Patient Advocate Foundation
http://www.patientadvocate.org/
Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment, and preservation of their financial stability.

The Rosalynn Carter Institute for Caregiving

http://www.rosalynncarter.org/home/                                                                                                   This organization works for advocacy and education.  It provides information and resources for caregivers.

Please refer to the National Wellness Community page for additional web resources.
http://www.thewellnesscommunity.org/hope/library.php